IFCAH (International Fund raising Congenital Adrenal Hyperplasia)

IFCAH First (DIGITAL) Symposium

10 years CAH Research Support 

Monday 14th June 2021, from 4.00 pm to 7.00 pm

Save the date

IFCAH is pleased to welcome all patients, patient’s families, researchers and clinicians to share their very last findings on CAH, obtained thanks to 10 years of IFCAH support.

International CAH experts will present their last results issued from their research work and respond to your questions

Speakers:

• Michel Polak: IFCAH 10 years CAH funding projects 
• Gerard Conway: CAH women fertility and pregnancy (to be confirmed)
• Hedi Claahsen: CAH men fertility: current insights on TART in male CAH patients 
• Li Chan: Ways of Androgens decrease : ACTH inhibitors
• Richard Ross: Adrenal glucocorticoid replacement in CAH 
• Leonardo Guasti and Andreas Schedl: Gene and cellular therapy

Free but mandatory registration. Registration link will be sent to you soon.

In 2020 IFCAH funded projects on Congenital Adrenal Hyperplasia for an amount of 350 000€. Following IFCAH’s call for projects, 21 letters of intent have been received. Among them, 11 projects have been pre-selected for being reviewed and auditioned by the scientific committee.

Following projects will be funded in 2020:

Dr Hedi Claahsen, Dr Antonius Herwaarden, “The risk for developing clinical signs of cortisol deficiency in CAH and acquired adrenal insufficiency – what makes the difference?”, 75 000 €

Dr Alaa El Ghoneimi,  “New standardized method for objective short and long term functional and morphological evaluation of operated CAH genitalia in children and adolescent: The EvaSurg study”, 50 000 €

Dr Gerard Ruiz Babot, “Generation of human steroid-producing organoids: a new approach towards a treatment for CAH (Renewal)”, 100 000 € (AFM IFCAH)

Dr Andreas Schedl, “Differentiation of stem cells into adrenal organoids”, 50 000 € (AFM)

Pr Gary Hammer, “Transcriptional programs involved in ACTH-induced hyperplasia – Implication of the transcription factor Hhex in adrenal differentiation and response to chronic hormonal challenges.”, 125000 €

Funded projects summaries are available online on our IFCAH website.

Medical and scientific professionals across the world are currently facing unprecedented challenges due to the Covid-19 pandemic. We have been having many discussions with IFCAH board of trustees about IFCAH first scientific symposium to decide the best course of action.

The IFCAH foundation has decided to postpone the first scientific symposium to the 14th of June 2021.  More information and new registration link will be published end 2020.

We wish you strength, safety and health over these coming months,

IFCAH Team

For its 10th anniversary IFCAH is organising the 15 of June 2020 the first scientific symposium dedicated to projects funded since 2010.

This first symposium will contain two parts:

• A first part(in English) dedicated to researchers and clinicians. The link containing the detailed program and the registration procedure can be accessed here.
• A second part (in French) dedicated to families of CAH patients. The registration link is available here.

Thank you again for your support, we hope you will be present to this first symposium,

IFCAH Team

In 2020 IFCAH (International Fund raising for Congenital Adrenal Hyperplasia) in partnership with ESPE (European Society for Pediatric Endocrinology) launches its tenth Call for Projects.

More information on our website.

IFCAH team

In 2019 IFCAH funded projects on Congenital Adrenal Hyperplasia for an amount of 250 000€. Following IFCAH’s call for projects, 17 letters of intent have been received. Among them, 7 projects have been pre-selected for being reviewed and auditioned by the scientific committee.

Pr Michel Polak (president of IFCAH’s scientific committee) announced the selected projects at the 58^th International Meeting of ESPE in Vienna, Austria. Selected projects are listed hereafter:

Dr Nicole Reisch, Dr Richard Auchus, “Prospective long-term follow-up of hypothalamus-pituitary-gonadal (HPG) axis in males with CAH”, 100 000 €

Dr Claudia Boettcher,  “Oral contraceptives in female adolescents with CAH: impact on the metabolome, and a way to optimize treatment with respect to androgen excess?”, 75 000 €

Dr Anna Nordenström, “Effects and importance of adrenalin deficiency in CAH”, 75 000 €

Funded projects summaries are available online on our IFCAH website.

In 2019 IFCAH (International Fund raising for Congenital Adrenal Hyperplasia) in partnership with ESPE (European Society for Pediatric Endocrinology) launches its ninth Call for Projects.

More information on our website.

IFCAH team

In 2018 IFCAH funded projects on Congenital Adrenal Hyperplasia for an amount of 350000€. Following IFCAH’s call for projects, 14 letters of intent have been received. Among them, 5 projects have been pre-selected for being reviewed and auditioned by the scientific committee the 18 of June 2018.

Pr Michel Polak (president of IFCAH’s scientific committee) announced the selected projects at the 57^th International Meeting of ESPE in Athens. Selected projects are listed hereafter:

“Pathophysiology and therapeutic challenges of Congenital Adrenal Hyperplasia”, Dr. Gerard Babot, IFCAH and AFM Funding: 150 000 €  (AFM Partnership)

“The epidemiology of congenital adrenal hyperplasia: a nationwide study.”, Dr. Claus Gravholt, IFCAH funding: 100 000 €

“In vivo characterisation of ACTH receptor antagonists.”, Dr. Li Chan (UK), IFCAH funding: 100 000 €

Funded projects summaries are available online on our IFCAH website.

We have the pleasure to address you the IFCAH Newsletter for 2018.

Please feel free to share it with your contacts who may be interested about this.

Hoping to have you among our supports,

IFCAH team

In 2017 IFCAH funded projects on Congenital Adrenal Hyperplasia for an amount of 350000€. Following IFCAH’s call for projects, 13 letters of intent have been received. Among them, 6 projects have been pre-selected for being reviewed and auditioned by the scientific committee the 19 of June 2017.

Pr Michel Polak (president of IFCAH’s scientific committee) announced on September 15th 2017 the selected projects at the International Meeting of Pediatric Endocrinology in Washington (USA) in front of 4000 endocrinologists from around the world. Selected projects are listed hereafter:

“Adrenal stem cells: identification, generation and culture for genetic modification”, Dr Schedl, iBV Nice, France, 120 000 €

“Cell-Based Therapy for the Treatment of Congenital Adrenal Hyperplasia”, Dr Bréault, Boston, USA, 120 000 € (100 000€ AFM)

“A systems biology approach towards the understanding of the pathophysiology of congenital adrenal hyperplasia”, Dr Krone, Université de Sheffield, 110 000 €

Funded projects summaries are available online on our IFCAH website.